![]() I got no information from them, I would ask questions get one-word answers, it wasn’t working, so I called my pulmonologist to ask to find somebody else - which he did, and it was a completely different experience with someone else. Well, my first experience with my infectious disease doctor, uh was not great. When you were first diagnosed with MAC, what was your experience with your physicians? I was hopeful that this would help me test MAC-negative, and it did so I was thrilled. I actually heard about ARIKAYCE from my pulmonologist. It did for a while, I did the treatment and once I was done, the initial multidrug treatment, I was OK for a while.Ĭould you tell me more about how you heard about ARIKAYCE? So you were on an initial multidrug treatment for MAC, did that work for you? I already had damage to both my lungs, and there was a great sense of urgency, to get started on treatment right away. When I saw the X-rays, I could see the damage she pointed out. My primary care doctor took an X-ray of my lungs because she didn't like what she heard. Honestly, it was like a deer in headlights. I wonder if you could share with me how it felt when you were diagnosed with MAC lung disease. ![]() Throughout my MAC treatment journey, I found that it's a rare but wonderful thing to have someone who really gets you, someone who can walk a mile in your shoes, and you in theirs. Join me as I learn more about MAC lung disease and ARIKAYCE, from a researcher, a doctor, and a patient living with this disease. ![]() I’m on this quest for knowledge to get answers for both you and me.
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